My sweet tiny little Isabella was diagnosed yesterday with this. I have no words for how awful this makes me feel. I can't imagine how much harder for my brother and his wife this is.

Did I mention they have no health insurance... at all?

They will be taking the baby to Kansas City this week for more tests and they will schedule open heart surgery to repair her tiny little heart for sometime within the next month or so.

She has a good prognisis, which is wonderful, but she'll have to have the surgery several times as she grows. My sister-in-law and I are both Registered Nurses and we have both watched, in person, open heart surgeries. It is some scary, scary shit. She will be hooked up to a heart-lung machine and her tiny beating heart will be stopped for the repair. How do you feel when it's your baby, the person you created, the heart that formed inside you, ceases to beat? What if it doesn't ever start again? As hard as it is for me to think about it, it has to be so much harder for them.